Category Archives: Advocacy

My Cloud

The question usually comes from good friends, at a time when I am struggling. They want to know how to help me the most. What is it like to have a psychiatric diagnosis? It’s like there is a dark cloud … Continue reading

Posted in Advocacy, compassion, Disabilitiy, Get To Know Me, how to help, Mental Illness, negative perceptions, Psychiatric Diagnosis | Tagged , , , | Leave a comment

I’ll Never Run…

It was a beautiful and crisp October day a couple of years ago when I met Chris. As Director of Community Health at the Lawrence-Douglas County Health Department, he, like me, wasn’t officially one of a team of people spearheading … Continue reading

Posted in Ableism, Advocacy, changing perspectives, communicating respect, Disabilitiy, Friends, inclusion | Tagged , , , | Leave a comment

Give Me Dignity…

In one of my college classes, someone shared his opinion that when Patrick Henry said “give me liberty or give me death,” he meant that if he could not be in control of his life, then he didn’t want to … Continue reading

Posted in Advocacy, cerebral palsy, Disabilitiy, Government Programs, Independence, Medicaid | Tagged , , , , | 3 Comments

I’m Not “Special”

Special. The word warms my heart in many ways. Except when it is used in the context of my disability. Then it kind of drives me crazy. Maybe it’s the label. When I was in school, I was mainstreamed. It … Continue reading

Posted in Accommodations, Advocacy, Attitudes, dance, Disabilitiy, Get To Know Me, negative perceptions, service dogs | Tagged , , | Leave a comment

Nevertheless…

Nobody could have predicted it. In the last few weeks, the phrase has become nothing short of common. “She was warned, nevertheless, she persisted.” It was a quote from Senate Majority Leader Mitch McConnell when he was asked about shutting … Continue reading

Posted in Ableism, Advocacy, changing perspectives, communicating respect, Disabilitiy, negative perceptions | Tagged , , , , | Leave a comment

The Morphine Made Me

If I had to come up with the main thing my disability has taught me, I would have to say it is how to be resourceful.  A mirror is tilted above my stove so I can see if a pot … Continue reading

Posted in Advocacy, Disabilitiy, Good Memories, Health, Laughter,, medical emergencies | Tagged , , | Leave a comment

Not the Sidelines

It is a lesson I learned when I was about fourteen years old. About halfway through my freshman year in high school, I started going to the varsity basketball games. Some friends of mine were on the team and I … Continue reading

Posted in Advocacy, caregivers, Disabilitiy, Facing a fear, Government benefits, Government Programs, inclusion, Medicaid | Tagged , , | Leave a comment